She Lives With Chronic Illness And Is Urging People To Request Their Medical Records More Often Because She Recently Learned Crucial Information About Her Health That Her Doctors Never Shared With Her
A woman who lives with chronic illness has issued an emotional PSA on TikTok urging her viewers to request their medical records from their doctors more often after receiving crucial updates on her health not from her doctors but from old records.
Maggie (@thehypermobilecpt) is a personal trainer, exercise rehab specialist, and nutritionist who’s been very open and vulnerable as she’s documented her personal health journey and experience with chronic illness.
In September, she filmed an emotional video after making a shocking discovery about her health by reading her medical records, something her doctors never told her during a hospital stay.
Maggie lives with Ehlers-Danlos syndrome (EDS) and Postural orthostatic tachycardia syndrome (POTS) and was in the hospital not too long ago. After her hospital stay, Maggie returned to retrieve her medical records so she could look through them and have them ready for an upcoming doctor’s appointment.
After retrieving her records and looking through them herself, there was crucial information about her health written down that her doctors never mentioned to her.
During one of her hospital stays, a doctor urged her to take an anticoagulant medication that would prevent blood clots, as she was lying in bed most of the time. Despite being in tremendous pain,
Maggie recalls having to speak up and say something to let her doctor know that anticoagulants can sometimes lead to severe complications with her EDS.
Maggie didn’t know at the time that the doctor had that information and other information on her health through her medical records, but she was never told anything until she got a hold of them herself.
Through her records, Maggie discovered that she’s resistant to a widely used anticoagulant but also at risk of throwing a pulmonary embolism.
leszekglasner – stock.adobe.com- illustrative purposes only, not the actual person
“As somebody who is gonna have surgery in the near future, that’s very important information for me to know,” says Maggie in her emotional TikTok video.
Then, Maggie found even more shocking information after reading her records.
“Not only that but how is this the way that I find out that I’m in stage two kidney disease?” Maggie asks.
“How is this fair in any way?”
Maggie explains in her video that despite seeing an ER doctor, three specialists, and her primary care doctor contributing to and having access to her records, she was never told anything about her kidneys, even though her records clearly state that she has kidney disease.
“This is gonna be like a PSA,” she says.
“Please get your medical records, and please go through them. If you don’t know what the levels in the blood tests mean, look them up. There have been signs in my blood work for years, apparently, that this was happening, that this was slowly progressing, and no one did anything. Nobody told me anything. Nobody warned me.”
Many comments on Maggie’s viral video were from concerned viewers who encouraged her to hire an attorney, while others were left by viewers who had also dealt with doctors who withheld important information from them.
“I requested all my records and found out I had thyroid disease at 16 when they never told me until I was 20,” commented one TikTok user.
“Why do doctors neglect to tell us vital information about our health?” commented another user.
We’re sending healing thoughts to Maggie and hope she gets all the answers she needs soon.
@thehypermobilecpt Please please please request your medical records and actually go through them because NO ONE TOLD ME THAT FOR YEARS MY KIDNEYS HAVE BEEN FAILING. I cant stress enough how much I hate the medical system at this point. #pots #mcas #chronicillness #ehlersdanlos #ehlersdanlossyndromecheck #potssyndrome #hypermobileehlersdanlossyndrome #mastcellactivationsyndrome #spoonie #spooniesoftiktok #chronicpain #medicalgaslighting #patientadvocacy #thehypermobilecpt #livingwithachronicillness #medicalrecords #diagnosisjourney #vascularehlersdanlossyndrome #kidneydisease
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