This TikToker Is Raising Awareness About What It’s Like To Live With Diastrophic Dysplasia– A Rare Form Of Dwarfism
Isabella Lamanna, a nineteen-year-old from Ontario, Canada, was diagnosed with a rare form of dwarfism known as diastrophic dysplasia just after being born.
Diastrophic dysplasia is a “disorder of cartilage and bone development that leads to an onset of joint pain and deformity,” according to the Children’s Hospital of Philadelphia.
The teen now stands at three feet tall and has been tearing down stigmas surrounding dwarfism starting from childhood, after doctors told Isabella’s parents that she might never walk.
“When I was born, the doctors had realized my hips were dislocated and, because of this, I would butt-scoot around the house,” Isabella explained in an interview with NeedToKnow.
However, she refused to let a diagnosis define her abilities.
“I have proved them completely wrong, learning how to walk, run and jump with dislocated hips still to this day!” Isabella said.
The teen has since gone on to accomplish numerous other milestones– such as earning an undergraduate degree in psychology this year and starting her journey as a content creator.
Since beginning to share her everyday experiences of living with dwarfism on TikTok, Isabella has gone completely viral.
TikTok; pictured above is Isabella in one of her videos
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Now, her account raises awareness about diastrophic dysplasia and allows followers to ask questions to better understand Isabella’s personal journey.
She has discussed her diagnosis, mental health, dating, and even how she completes different tasks– such as how cooking and driving.
For example, to drive, Isabella has a custom panoramic rearview mirror, extended pedals, and a custom-made driver seat to help make driving accessible and safe. And this is just one example of the numerous informational videos that have made the teen’s follower base fall in love with her.
She has quickly gained over 27.3 million collective likes on TikTok and now has over eight hundred and eighty-seven thousand followers. Isabella could not be more thrilled about this because she simply hopes to make a difference in other people’s lives.
“Ultimately, I want to help and inspire people of all heights and show other little people that they must embrace their differences and never give up or say they cannot do something without trying,” she began.
“The message I want to send is that you cannot change who you are. So, you must embrace it,” Isabella continued.
To support her mission of empowerment and awareness– as well as learn more about the teen herself– you can visit Isabella’s TikTok account linked here.
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